Supporting Rare Disease Patients

Organization information

CF Orphanni Synytsi

Location: Kyiv, Ukraine

Summary

If diagnosed with a rare disease, most people can expect a genetic origin, an expensive life-long treatment, and a disability. 70% of rare diseases start in childhood. Some of them cause severe breathing difficulties and these patients begin to live each day with fear of suffocating. This project aims to raise funds for purchasing the specific medical equipment - oxygen concentrators, inhalers, aspirators- for 20 patients so they can have access to the everyday respiratory in-home care they need

Project locations

Ukraine